The day is I was diagnosed this was the ultimate question running through my head. I had interviewed patients with MS for a few articles so I did know a little about what it meant for me. But in-depth knowledge alluded me. So, I turned to the internet.
And these were the sites I found useful then ... and a few I have found since.
First off, the MS Society site - www.mssociety.org.uk
This site has a wealth of knowledge that is probably unrivalled. It's also getting re-launched next month as part of MS Awareness Week so keep an eye for a new design and even more information than ever before. I'm also going to featured on here in a series of videos talking about my experiences, filmed on the day I went into labour (more about these in a future post!).
Second up, the community site that was set up to bring together those with MS. Shift.ms aims to give younger patients with MS a voice and a chance to talk to others. So if you want some first-hand stories about what MS means then this is the place to go. http://shift.ms
Other sites that are full of information include www.mstrust.org.uk and www.msrc.co.uk
Finally, a site that brings together a huge amount of MS bloggers. www.msbloggers.com
This is what I really wanted that first day - real people talking about real issues. If you really want to know what Multiple Sclerosis is then settle yourself down for a few hours and get reading here!