Monday 18 June 2012

What a rollercoaster

Funny old thing, this MS. One minute it has you completely on the floor, albeit sliding slowly onto it, the next hovering somewhere in middle ground, before a quick push later and you're back on your feet.
And that's where I was at the end of last week, yet today I'm back on middle ground.
It's a never-ending rollercoaster, with the dips and highs appearing erratically and totally unannounced.
For weeks,  outwardly, I was the same old me. At work, keeping a house in order, looking after Charlotte, making sure she was entertained, educated, looked after, being a decent wife* ... need I go on?! 
But I was ignoring the fact that I wasn't actually very well at all. Far from it.
Instead, I was trying new medications, hoping for a quick fix, but not really stepping back and seeing exactly what it was I needed to be doing to help myself.
In the end, MS pushed me too far and I am nearing my second week off work.
Hard as it has been for me to take that time, today I am very mindful at it has absolutely been the best thing for me to have done.
But it has been a very frustrating time. Just five days ago I was about to attempt a day a work, convinced I was much better, only to find myself really not improved at all today.
And I'm the sort of character that needs to be at work. I crave the structure and the focus. But no matter how much my head is telling me I can do it, my body simply isn't playing ball.
I have spent the best part of yesterday and today either asleep or curled up on the sofa.
Gutted doesn't even cover how I feel today. 
But tomorrow I will be back at work. I need to try. Otherwise I might actually go slowly mad! 

*my poor husband may disagree but I am trying! 

(and this was supposed to post yesterday so it's a day late! ... So to update, I survived work ... just! ... Will update properly tomorrow!)

7 comments:

  1. Glad you got back to work today. Hope you get on some new med soon that will prevent all these issues! So sorry you aren't feeling better.

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  2. It's a wild ride, don't remember buying a ticket?

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  3. That's hard going Catherine. Hope the day at work went okay and didn't exhaust you too much. Thinking of youxxx

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  4. Hi catherine, have you ever looked into low dose naltrexone? It's supposed to be excellent for MS. I haven't had an official diagnosis yet but if I do LDN would be the only med I'd opt for. Just google it. Feel better soon xxx

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  5. Hi Lisa,
    Have heard of it but never looked into it properly so I'll go have a look now.
    Thanks taking time to comment ....

    That goes for everyone else too ... I really appreciate all comments, they keep me going on the tough days :)

    Catherine xxx

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  6. I don't think it's officially approved yet in the UK for the treatment of MS but I think you can fight to get it. Www.lowdosenaltrexone or the MSRC website has loads of info. Best of luck xxx

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  7. Thanks again Lisa ... Plenty to think about! Xx

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