... I hope she brings a smile to your face :)
Friday, 17 December 2010
Just in case
The last few weeks have been beyond manic - but I believe I can be excused for my lack of updating the blog given that I have a 5 week old at home! Charlotte has quite simply taken over - in the nicest possible way.
MS wise this last few days have not been easy. My feet are playing up again and the pain in my right foot is not unbearable but it isn't pleasant either. That said, I am delighted to report that I have not yet had a relapse following Charlotte's arrival. It's well documented that your chances of a relapse following pregnancy are increased so I feel incredibly lucky to be generally quite well.
However, I have placed myself back on the active waiting list for disease modifying drugs. I am not sure if taking such toxic medicine is the road I wish to pursue just yet but I do believe in keeping my options open. Therefore, given that there's a 13 week wait for the medication, it makes sense that I am on there 'just in case'.
It's a decision I will need to take after some serious soul searching and I'm hoping that it will suddenly become clear in the coming weeks. In the meanime, I am looking forward to spending Christmas with my family - especially my new daughter!
MS wise this last few days have not been easy. My feet are playing up again and the pain in my right foot is not unbearable but it isn't pleasant either. That said, I am delighted to report that I have not yet had a relapse following Charlotte's arrival. It's well documented that your chances of a relapse following pregnancy are increased so I feel incredibly lucky to be generally quite well.
However, I have placed myself back on the active waiting list for disease modifying drugs. I am not sure if taking such toxic medicine is the road I wish to pursue just yet but I do believe in keeping my options open. Therefore, given that there's a 13 week wait for the medication, it makes sense that I am on there 'just in case'.
It's a decision I will need to take after some serious soul searching and I'm hoping that it will suddenly become clear in the coming weeks. In the meanime, I am looking forward to spending Christmas with my family - especially my new daughter!
Monday, 22 November 2010
Presenting Charlotte Beth ...
She's here ... our precious girl - Charlotte Beth - was welcomed into the world on 11th November at 4.31pm weighing in at 7lbs 12oz and she is honestly the best decision I have ever made!
Already our house is filled with an inordinate amount of pink and it finally feels like the family home we so hoped it would be.
And I know I'm naturally biased but she is simply perfect!! At the minute she's curled up sleeping in her moses basket while her daddy cleans the house and I have ten minutes out to myself on here.
If I ever had one ounce of doubt that becoming a mum was perhaps not the right move it has been banished without a second thought because I promise that it is THE most amazing feeling and privilege I have ever had the benefit of having.
Yes she is hard work, like all newborns, but I would go without every lost second of sleep all over again in an instant.
So, to anyone with MS who wonders if having a child is possible, my resounding response is most definitely yes. And I know everyone's circumstances are different and that I myself may have moments in the future when it seems an impossible task but when Charlotte looks at me with wide eyed wonderment every time she wakes it is no exaggeration to say that she makes my life complete - and I wouldn't exchange that feeling for anything in the world.
Wednesday, 27 October 2010
The uncertain path ahead
Here's the thing. When I started this blog I promised myself that it would document all aspects of life with MS - the good, the bad and the ugly. But as I wish for it to remain a positive account it is sometimes easier to ignore the bad and ugly sides.
However, in recent weeks I have found it difficult to sidestep the issue of uncertainty and that's why I've been away for a while. I genuinely feel that voicing my concerns here will have a negative impact on my thought process but in the interests of keeping it real - here goes.
Of course, the impending arrival of my first born - expected in just over 2 weeks - has me very excited and I've never questioned our decision to have a child - both J an I are going to be great parents (if I do say so myself) - and will strive to give our child(ren) all the love and support they will ever need.
BUT, and here's where the uncertain aspect of MS rears its ugly head, it does worry me that having a child has been a somewhat selfish decision. Yes, we will be great parents and as John Lennon once said, 'Love is all you need' but is it fair for me to sentence our unborn baby to a life with a 'sick' mummy.
It's so frustrating because as I, and all MS patients, know, there is no crystal ball for what lies ahead. I may never deteriorate further and if being this 'sick' is all I have to face then I would be a very happy woman. But there simply is no knowing.
I hate that I go to sleep some evenings and worry about what sort of state my own body will have left me in by morning. I've read the experiences of other MS patients and know that there's a possibility I could, for example, suddenly wake up with impaired or no vision. And there's no point in pretending that that thought doesn't scare the absolute c**p out of me.
I also hate it that MS isn't something I can work at getting rid of. It's there, inside me, working whatever damage it feels like doing - and no amount of positive thinking can make it stop.
In essence, it's an uncertain road and I'm at its mercy.
Yet, I will finish on a positive note - I can't bear not to! For all of its faults and the uncertain future it represents, MS has not taken away any part of my personality - and I am determined that my child will grow up with a confident, happy and positive mum by its side - you just watch!
However, in recent weeks I have found it difficult to sidestep the issue of uncertainty and that's why I've been away for a while. I genuinely feel that voicing my concerns here will have a negative impact on my thought process but in the interests of keeping it real - here goes.
Of course, the impending arrival of my first born - expected in just over 2 weeks - has me very excited and I've never questioned our decision to have a child - both J an I are going to be great parents (if I do say so myself) - and will strive to give our child(ren) all the love and support they will ever need.
BUT, and here's where the uncertain aspect of MS rears its ugly head, it does worry me that having a child has been a somewhat selfish decision. Yes, we will be great parents and as John Lennon once said, 'Love is all you need' but is it fair for me to sentence our unborn baby to a life with a 'sick' mummy.
It's so frustrating because as I, and all MS patients, know, there is no crystal ball for what lies ahead. I may never deteriorate further and if being this 'sick' is all I have to face then I would be a very happy woman. But there simply is no knowing.
I hate that I go to sleep some evenings and worry about what sort of state my own body will have left me in by morning. I've read the experiences of other MS patients and know that there's a possibility I could, for example, suddenly wake up with impaired or no vision. And there's no point in pretending that that thought doesn't scare the absolute c**p out of me.
I also hate it that MS isn't something I can work at getting rid of. It's there, inside me, working whatever damage it feels like doing - and no amount of positive thinking can make it stop.
In essence, it's an uncertain road and I'm at its mercy.
Yet, I will finish on a positive note - I can't bear not to! For all of its faults and the uncertain future it represents, MS has not taken away any part of my personality - and I am determined that my child will grow up with a confident, happy and positive mum by its side - you just watch!
Thursday, 7 October 2010
It'll all be worth it in the end!
Okay, so I've just over five weeks to go and I'm already hoping that I defy the myth of first time mums going late and have this baby early. Not massively early because I, of course, want it to be a good weight - lovely and healthy. But honestly, carrying a baby is hard work.
This week has felt especially hard because the wee mite is doing what it's supposed to and moved head down into my pelvis ready for labour. So, once again, while I'm all chuffed that it's behaving itself and doing as nature intended, it is really starting to hurt.
I have tiny feet pushing up under my ribs at the right, two little fists punching my left side and a head pressing on my bladder - usually all at the same time!
Work today has dragged as I cannot find a single way to get comfortable, and I'm also conscious that this time next week I'll be finishing up - and I'm counting down the hours in anticipation.
Thankfully I held onto some of my holidays so I'm only at my desk for 5 hours next Monday and all of next Thursday, so it should fly by. Then I simply intend to hibernate at home and start nesting - ready for the much-anticipated arrival of our precious bundle of joy.
And once it gets here I'm sure all the aches and pains of recent weeks will simply fade into the background ... and the sleep deprivation will take over instead!!!
This week has felt especially hard because the wee mite is doing what it's supposed to and moved head down into my pelvis ready for labour. So, once again, while I'm all chuffed that it's behaving itself and doing as nature intended, it is really starting to hurt.
I have tiny feet pushing up under my ribs at the right, two little fists punching my left side and a head pressing on my bladder - usually all at the same time!
Work today has dragged as I cannot find a single way to get comfortable, and I'm also conscious that this time next week I'll be finishing up - and I'm counting down the hours in anticipation.
Thankfully I held onto some of my holidays so I'm only at my desk for 5 hours next Monday and all of next Thursday, so it should fly by. Then I simply intend to hibernate at home and start nesting - ready for the much-anticipated arrival of our precious bundle of joy.
And once it gets here I'm sure all the aches and pains of recent weeks will simply fade into the background ... and the sleep deprivation will take over instead!!!
Monday, 20 September 2010
8 weeks and counting ...
The birth of the baby is fast approaching - just 8 weeks to go!! - so we have brought the pram home (I swear it needs two months to get used to all the buttons and gadgets!) and I am eagerly awaiting the arrival of our nursery furniture.
I cannot wait to get all the little white and 'neutral' clothes washed, ironed and hung up in the cute wardrobe we've ordered. But before all of that I really need to think about getting my 'bag' packed. My mum is convinced I'll never go to full-term (I'm not THAT big, honest) - but it's better to be safe rather than sorry, especially as I could never trust J, as brilliant as he is, to pack all the right stuff under pressure! I can just see myself mid-contraction screaming, 'No, not that pair, I need my fancy slippers!'
Aside from all the excitement this baby-growing lark is hard work. I've been getting really tired lately, which everyone warned me would hit around this time, and I find myself wanting to sleep in the middle of the day. But it's also a time when the baby's movements are really pronounced - I get kicks all day and find little body parts digging up under my ribs at night - which is the most unbelievable (and sometimes uncomfortable!!) feeling in the world.
Overall though I've enjoyed being pregnant. It's such a miracle, to grow another human being - the magnitude of which I have never fully appreciated before now. To think a little person, half me and half J, is almost here is an overwhelming thought. And I am sure it will be a life changing experience like no other.
I cannot wait to get all the little white and 'neutral' clothes washed, ironed and hung up in the cute wardrobe we've ordered. But before all of that I really need to think about getting my 'bag' packed. My mum is convinced I'll never go to full-term (I'm not THAT big, honest) - but it's better to be safe rather than sorry, especially as I could never trust J, as brilliant as he is, to pack all the right stuff under pressure! I can just see myself mid-contraction screaming, 'No, not that pair, I need my fancy slippers!'
Aside from all the excitement this baby-growing lark is hard work. I've been getting really tired lately, which everyone warned me would hit around this time, and I find myself wanting to sleep in the middle of the day. But it's also a time when the baby's movements are really pronounced - I get kicks all day and find little body parts digging up under my ribs at night - which is the most unbelievable (and sometimes uncomfortable!!) feeling in the world.
Overall though I've enjoyed being pregnant. It's such a miracle, to grow another human being - the magnitude of which I have never fully appreciated before now. To think a little person, half me and half J, is almost here is an overwhelming thought. And I am sure it will be a life changing experience like no other.
Monday, 6 September 2010
Finally ... flat shoes I love!
In my constant quest to find a pair of gorgeous flat shoes that are both comfy and on trend - rather than sore to wear and plain black - I spent a glorious half hour in Dune at the weekend trying on every pair they had. Eventually they came up with these ... the most beautiful pair of flat shoes I have ever had the priviliege of owning.
They also had several other pairs of flats, including winter boots, that I now covet greatly. Roll on for the next pay day when I might just treat myself again.
As an aside they also had a very beautiful bag in store that was screaming to be bought - and big enough for me to justify buying as a crossover changing bag for when the baby arrives - but it was priced at £135 (!!!!) and in fact not justifable at all in the current climate of saving for baby so if anyone would like to treat me it looks like this and comes in three colours - I'll take any one you like :)
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